For a little over a year I hosted a support group at Meetup.com. Although we did not have many meetings, I was glad to talk to others dealing with amelo. Communicating through the internet is great, but that never replaces seeing others face to face. Unfortunately, I do not have time to continue on with the group and give it the attention it really deserves. So I have decided to close down shop.
I have other factors in my life that need my full attention and unfortunately something had to give. I urge anyone who is looking for support to check out the Yahoo! support group.
Always remember that even though this is a rare disease, you are not alone.